The Battle’s Over !


In a previous post, I pointed to the growing epidemic nature of Hepatitis C.

I’ve posted here many times concerning my responses to the side effects of what I’ve called the “abusive” drugs I took for the treatment… Yes, “took”.

Today is the first day, after eleven months, that I will not take them! I must have tests at six months and a year to see if the virus is really gone but my immediate battle is over !!

Now, to lick my wounds by working to rid my body of the traces of the drugs (2 – 6 months)…

I want to add a remark I left on the Group, alt.support.hepatitis.c, and the response from one of the most compassionate and knowledgable members of that Group:

~~~

Hey, Fellow Dragon-Slayers, On Wednesday the 30th of April I cease the intake (48 weeks–type 1a) of the “abusive” drugs. I’m well aware I have three most important dates after that–results of the blood draw on that day and the 6 month and one year checks. Still, I’ve been doing some blogging about my experience (including the growing epidemic nature of Hep C) and I want to celebrate the 30th in the blog. You can definitely help. Tell the world how you felt when you stopped taking the drugs. God knows what my percentage is for complete SVR or a “cure”; still, I’m overjoyed about cessation of the drugs!!! Will you help me make my blog shimmer and glow that day?!? ~ Alex


~~~


Well, I dunno about “shimmer and glow”, but here’s what I remember…The last shot of Peg, and a week later, the last handful of Ribavirin, left me feeling elated, relieved – and anxious as heck. I had even mentioned here that – after the full 48 weeks and total compliance to the regimen – I was leery of
stopping the meds. I had been clear from the first VL test (at 12 weeks) through to the end, but being a g1b with a lot of strikes against success, even though I was still anemic as hell throughout therapy, it felt “safer” to just keep taking the drugs, to keep on keeping the virus at bay.

Of course, I stopped on schedule. It would have crazy to keep going 😉 And I was very lucky in the SVR Sweepstakes…and still am.

Cheers

/greyhackles


Digg!

Food . . .

If you like this short post, you might also appreciate the more recent one:
Food, Crisis, and the Human Spirit.

Just barely getting back my appetite for Real Food (the Hep C drugs really mess with stomachs and feelings for “comfort” foods).

Learning a lot about Whole and Raw Foods.

Some days I’m completely surprised I still have a living body considering the decades of self-imposed abuse.

I must have a soul holding me up . . .

‘Course, there’s food and there’s Food:

“O God! ….Prepare for us the Food of Love! Give to us the Food of Knowledge! Bestow upon us the Food of Heavenly Illumination!”

The Compilation of Compilations vol. I, p. 429

“Good” and “Bad”

Gotta dance ’cause I sure don’t wanna cry…

I’m so happy I began my new business; I’m happy the medical treatments are almost finished; hell, I’m happy I was able to walk here to the coffee shop.

‘Course, that happiness doesn’t stop the suffering from the treatments.

If you’ve read a number of posts in this blog, you may be tempted to say: “Why so much negative stuff?”

Well…

It’s “bad” that I got Hep C and the side effects from the drugs are “bad” BUT the submission to God’s Will and the resignation to His Power I’ve been learning are “good”. Sometimes, it takes quite a crisis to teach me a lesson.

“Know ye that the embodiment of liberty and its symbol is the animal. That which beseemeth man is submission unto such restraints as will protect him from his own ignorance, and guard him against the harm of the mischief-maker. Liberty causeth man to overstep the bounds of propriety, and to infringe on the dignity of his station.”

[ Bahá’u’lláh, Gleanings from the Writings of Bahá’u’lláh, p. 335 ]

Also, I feel, since I’m going through the treatment and understand the threat of the virus, that not sharing information would be criminal:

“It is suspected that there are, at present, more than 5 million people in the United States that are infected with Hepatitis C, and perhaps as many as 200 million around the world. This makes it one of the greatest public health threats faced in this century, and perhaps one of the greatest threats to be faced in the next century. Without rapid intervention to contain the spread of the disease, the death rate from hepatitis C will surpass that from AIDS by the turn of the century and will only get worse.”

If you’re concerned about Hep C (for yourself or others) a wonderful and supportive space is the alt.support.hepatitis-c group !

I’m gonna dance on outta here…

What’s the point?

garden-23.jpg

Someone recently asked me what I thought the point of my writing is.

Here was my response to them:

Suffice it to say that I believe in Spirit over Matter and in One God
Who gives us all we have.

I try to reflect those beliefs in my three blogs and in my books.

The fact remains that my liver was infected with a deadly virus and
I’m doing the treatment for that. I’m also trying to portray what
it’s like to suffer through the Hep C treatment and look ahead to
better days…

Some of my humor is “dark” and I’m aware the drugs do warp things a bit.

I “caught” the virus because, for far too many years, I was not close
to God… But, now that I have it, I can’t just think or pray it away.
God is Merciful but is also Ultimate Justice.

I’m “paying” for a loose lifestyle. Some would call it burning off Karma…

Slow Growth Seen in Hepatitis C Market

wireframe_virus.gif

“Jefferies Sees Slower Than Expected Growth in the Hepatitis C Drug Market”

That image is a model of one of the little buggers that infected my liver.

The link below the image is to an article that, basically, looks ahead to new drug mechanisms for treating Hep C.

As too many people used to say way too often: “It’s all good”.

However, being what we, the sufferers, call a “Dragon Killer”, I’m aware of the $100,000 cost for current treatment [ I’m a Vet and “lucky” the government is paying that…].

The company that makes one of the main drugs makes a large enough profit to maintain a 24/7 hot line staffed with nurses.

I don’t wish the treatment I’m going through on future Dragon Killers and truly hope better regimens are found.

But…

With the Weird State of Mind induced by the drugs I take, a “Slow Growth Seen in Hepatitis C Market” could be remedied by CDC: Hepatitis C in Nev. could be ‘tip of iceberg’“:

“The city of Las Vegas shut down the Endoscopy Center of Southern Nevada last Friday after state health officials determined that six patients had contracted hepatitis C because of unsafe practices, including clinic staff reusing syringes and vials. Nevada health officials are trying to contact about 40,000 patients who received anesthesia by injection at the clinic between March 2004 and Jan. 11 of this year to urge them to get tested for hepatitis C, hepatitis B and HIV.”

Edification . . .

kids-stuff-03.jpg

Oh, SO grateful for the Uplifting Enlightenment of my E-Friends.

Massive proof to me that Soul Rules—never met them in person yet with them in Spirit . . .

~~~~~~~~~

With my body so wracked by the treatment to fight Hep C, I work to induge my soul in Seasons of Prayer.

~~~~~~~~~

I sent a prayer to Alexys Fairfield from a WebSite I’d discovered.

Not only was she grateful, she posted this:

“Sometimes we need to hear them. We need to see them. We need to read them. We need to feel them. We need to be them.

“They are prayers. Words written to heal our Souls. Words written with a golden pen to infuse a little light into our life.”

Hello world!

recreation-19.jpg

I’m just finishing a long and grueling medical treatment.

I’m moving back out on my own.

I’ll be hanging out in a groovy coffee shop with my new computer.

I’m going to start a business that offers Whole Food Supplements (I’m also going to take the supplements to get me back to prime health after this horrible Hep C treatment…